Steven C. Tremblay

March 11, 2012
CAPE ELIZABETH - Steven C. Tremblay, 62, of Hillcrest Drive died Sunday, March 11, 2012 at Maine Medical Center. Steven was born in Waterville, Maine the son of Norman C. and Lorette Rose Giroux Tremblay. He attended local schools and graduated from Waterville High School in 1968. Steve was a scholar athlete and a champion hockey player on the legendary team that won the Class A State Title all four high school years. He was a starting forward for the 1968 New England Championship Hockey Team. Steve went on to further his education at Worcester Polytechnic Institute. While in college in 1971, Steven sustained a spinal cord injury with resulting quadriplegia. Following months of rehabilitation, he continued his education and earned an engineering degree in 1972 from WPI. Steven began his professional life in 1975 when he was named the Maine State Coordinator for the New England Spinal Cord Injury Foundation. That year he was appointed to the Governor's Committee for Employment of the Handicapped. Through his experience and with the mentorship of Ron Hanson of the State Bureau of Rehabilitation, Steven learned about the many needs of Mainers with disabilities. In 1979 Steven founded Alpha One, Maine's first Center for Independent Living (CIL). Headquartered in South Portland, Alpha One grew to have regional offices in Presque Isle, Bangor and Augusta. Steven had a firm belief that the key to living with a disability is having the self determination to live your own life and make your own decisions. His principles of self-direction, non- discrimination, independence and productivity were imbedded in all of the services that were developed at Alpha One. With Steven at the helm, Alpha One created many vital programs geared to assist people with disabilities to achieve their own independence, self determination and productivity in the community. Among Alpha One's "firsts" were the Adaptive Driving Evaluation Program, home access/modifications, adapted recreation, peer support and resource coordination services, and the development of accessible housing. In 1980, Steven was an influential member of a coalition of state policy makers and advocates that created Maine's Home Based Care Act which set the groundwork for forming one of the first in the country State funded consumer directed person assistant (PA) programs. By 1984, Steven and his staff began working at the federal level to access funds through one of the first Medicaid Waivers to support flexible funding to expanded consumer directed PA services to more Mainers. Steven served as the Chairman of the Maine Independent Living Commission in 1985 which was charged by the state to study how to best provide services that encouraged independence and full inclusion for people with disabilities in Maine. As the Commission completed its work Steve took on another task. He collaborated with his esteemed colleagues-- Kim Wallace and Stan Provis to create, through a citizen's referendum, the first in the nation $5 million Adaptive Equipment Financing Loan Program. This program has since been modeled by more than 43 other programs across the country. Now known as the mPower Loan Program, it provides low interest financial loans to Mainers and business entities so they have the purchasing power needed to buy adaptive technology, equipment, and to make home or building modifications to promote independence, productivity and access. Steve also started a durable medical equipment company as a wholly owned subsidiary of Alpha One. Wheelchairs Unlimited had the goal of selling and servicing mobility equipment with retail locations in South Portland, Augusta and Lewiston. Steve was one of the many people who contributed to the writing of the federal Americans with Disabilities Act of 1990 (ADA) and was in the White House Rose Garden with President George H. W. Bush when the Act was signed into law. Steve had the vision to anticipate the impact of the ADA and hired the first Architect employed by a CIL in the nation to specialize in ADA access design, universal design and ADA regulations. In the early 1990's, President Bush recognized Steve as a Daily Point of Light Honoree for his tireless work helping people with disabilities. True to Steve's philosophy of self determination, Alpha One was awarded a large Robert Wood Johnson Foundation grant that supported the "Home to the Community" project. With this project funding, the Alpha One staff worked to assist more than 30 individuals with disabilities to plan for and move back into their community from nursing homes where they had been living. Steven became well known and respected in Maine, across New England and nationally. He was an agitator and advocate, an entrepreneur, a visionary, an instigator, a leader and coalition builder, and was very passionate about his company and the consumers served across Maine. Through more than 30 years of Steve's leadership, vision and advocacy, thousands of Maine citizens with disabilities have lived independently in their own communities. Those individuals have employed hundreds of Mainers to work in the community based services industry. In 1990, Alpha One was awarded the Robert Wood Johnson Foundations Milbank Award of Excellence. In 2000, Steve was honored for his professional accomplishments by his alma mater and received the WPI Washburn Alumni Award. That same year, he received an honorary degree of Doctor of Humane Letters from the University of Maine Farmington. The degree was awarded for Steve's "achievements and lifelong dedication to the betterment of the lives of others." Steve was an avid fan of the Fighting Irish of Notre Dame. His father was an ND alumnus and for many years they led family and friends to South Bend for ND football games. There are always many good stories and "tales" that come from these adventures. Steve also loved to SCUBA dive, taking many dive trips to Bonaire and the Cayman Islands and would also dive locally off the Maine coast. Steven was predeceased by his parents and his dear friend and brother-in-law Daniel Veilleux. He is survived by his beloved son Mario and daughter Maria, their mother Carol Tremblay of Cape Elizabeth; his beloved sister Rachel Veilleux of Waterville, nephew Anthony and his wife Kristen Veilleux of Clayton NC, nieces Danielle and her husband Stephen Taber of Ashaway, RI and Andrea and her husband Jason Kipp of Bowie MD; great nieces Allison, Grace and Lidia Taber and great nephews Zachary Veilleux and Jackson Taber. Relatives and friends are invited to attend a Mass of Christian Burial at 1:00 pm, Friday, March 23, 2012 at St. Bartholomew Catholic Church, 8 Two Lights Rd, Cape Elizabeth with Rev. Msgr. Paul F. Stefanko officiating. Burial will be private. Arrangements are under the direction of the Conroy-Tully Crawford Funeral Home, 172 State Street, Portland ME. In lieu of flowers, please make a donation in Steven's name to the Miami Project to Cure Paralysis at www.themiamiproject.org.Online condolences may be expressed below.
I am a former employee and I like to say friend of Steven’s. Steven was a true visionary and a wonderful person. My heartfelt sympathy goes out to all his family and everyone that ever knew him and how brightly he shined.
– Laurie Webb
I was so sorry to hear of the passing of Steve. My late husband, David, worked with Steve in the late 70’s to get ALPHA 1 up and going. David had such a great respect and admiration for Steve’s ability to do so much great work dispite his disability and how he used his position to better the lives of others. Steve certainly helped to make many lives better. I met Steve and a few of the fund raisers and events back in the beginning days of ALPHA1 and was so impressed with his optomism. Please accept my sincere sympathy.
– susan given
Mentor, friend, leader. Your vision, humor and wisdom are truely missed.
– Zahira
This message comes from a friend from the past. Kris and I did not know Steve’s immediate family but Rachel will certainly remember all the times us boys were making noise in Steve’s basement lifting weights for the many upcoming hockey seasons. I was attending Merrimack College when I received the call of Steve’s accident and visited him shortly thereafter in the hospital in Worchester. He was a strong individual and will be missed. When things like this happen one searches their soul and wishes that they had kept in better contact with friends. I now fall into that category. Steve – you will not be forgotten and we want to express our condolences to your family. Our hearts go out to them. Paul and Kris Lemieux, Boise, Idaho.
– Paul and Kris Lemieux
To the family please know that many of us feel the loss of such a gifted person. I remember the first time I met Steven it was in the office that was by the million dollar bridge and it was November of 1985 and Dean and I went there to fill out a need for home care services. We had our newborn son with us and he was really fussy and wanted to nurse and Steven came out and offered his office so that I could have privacy and made me feel as though I was helping him by using it. He then followed up to make sure I had my needs met. He also offered to show me how I could help ensure that the programs stayed in place and how as one person I could help make a diference My son is now 27 and doing well and I still am using the services and have learned how to use my voice thanks to Steven and all he help start here in Maine and I can never say thanks enough for all he has done and many will have a much better life thanks to his visions. Please know that many will mourn but hopefully we also remember to celebrate such a wonderful man and all of his dreams. I want to say to Rachel it was great fun working with you in Augusta you have a passion for life just like your brother and our prayers are with you all. May you find peace in the memories and never forget what a blessing he has been and will be for many years to come. God Bless and Prayers to help you stay strong and take time to celebrate him. In Gods Love Alice M Conway 521 Turner Street Auburn, ME
– Alice Conway